tag:blogger.com,1999:blog-8545367433915449032.post3113742925454914056..comments2023-06-20T05:13:25.881-04:00Comments on Beyond Graves' Disease: Flush Twice: Life After Radioactive Iodine TreatmentAmy Joyhttp://www.blogger.com/profile/17198096563988401941noreply@blogger.comBlogger35125tag:blogger.com,1999:blog-8545367433915449032.post-85488703734008414982018-08-10T23:08:45.707-04:002018-08-10T23:08:45.707-04:00I am glad to have read this posts. I was diagnosed...I am glad to have read this posts. I was diagnosed hyperthyroidism 2months ago and on Tapazole a month after I was hospitalized with fever, severe headache, hard to swallow-severe tonsilitis-like, yellowing of eyes and skin and super low white count cells. It turned out I was allergic to Tapazole the only meds I can take for my hyperness so the doctor said that ee have to do RAI.<br /><br /> I just had 14mCi 12 days ago and had been staying away from my 9,7,2,1 year olds, on a friend's empty condo. It is very heartbreakin to be away and sleeping alone.<br /><br />After RAI I was very tired and the next day when I woke up my eyes were puffy and a little bit sore in the neck area so I took the doctor's prescribed meds. Been peeing almost every hour and they said that is good because you're taking out the radioactive material but I have been washing my hands dry just so I could not spread it.<br /><br />12 weeks after I get this pain in my neck and its painful to swallow but the rest of the days I was just fine except for some bouts of dizziness and its hard to sleep (maybe bec im alone or bored?) <br /><br />I am supposed to end this stay-away on Monday but Im kinda scared for my kids. But I will just have to trust God that HE will take care of them. Its so hard to fight the radiation you cant see, but I went back to the nuc med and had my radiation level checked and it was .7mSi and will have it checked again on Monday before going home. Had been searching google how to's on protecting exposure but there is no textbook material everybody says different things.<br /><br />I feel your pain finding and I just want to tell you everything will be ok.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-91824232945671860722016-10-25T05:36:45.410-04:002016-10-25T05:36:45.410-04:00Graves ’ Disease is an immune system disease that ...Graves ’ Disease is an immune system disease that influences the thyroid organ. Graves ’ Disease Herbal Treatment that can help you treat the side effects and carry on with a moderately ordinary life. Herbal Supplements play a vital role in the treatment of grave sicknesses.<br /><br />http://www.herbs-solutions-by-nature.com/Graves-Disease.phpHerbs Solutions By Naturehttps://www.blogger.com/profile/10167497683279683017noreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-45335292749035088062015-12-10T21:42:04.856-05:002015-12-10T21:42:04.856-05:00I had RAI six months ago. I was monitored all aft...I had RAI six months ago. I was monitored all after the treatment but I moved and I was in the wrong doses for synthroid. My levels look normal but I am experiencing severe sever hair loss. Is this expected? Do you have suggestions?<br />ThanksAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-62004937934236606912015-10-29T17:31:30.441-04:002015-10-29T17:31:30.441-04:00I gained about 10lbs ever since I had the Radioact...I gained about 10lbs ever since I had the Radioactive Iodine Treatment years ago. I take my medication in the am first thing and try to wait 30mins before eating / drinking. Its a struggle losing weight. I have tried cleanses, diets. What am I doing wrong?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-88864574316703183102015-10-07T15:35:32.891-04:002015-10-07T15:35:32.891-04:00I will take my RAI treatment Friday, I feel pretty...I will take my RAI treatment Friday, I feel pretty good, took thyroid meds (hyper) for about 10 months, i have 5 nodules, non cancer, but my doctor still want be to the RAI treatment. I want to feel good, being overweight, is not good. <br />Sheiliahttps://www.blogger.com/profile/17732973609180148810noreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-83509530311361288602015-06-22T10:57:24.878-04:002015-06-22T10:57:24.878-04:00This is a very common concern for those of us that...This is a very common concern for those of us that undergo RAI treatment, and one that I had as well. (My hyperactive thyroid had me eating whatever I wanted and not gaining weight. I could literally lose weight overnight, so naturally, I was afraid of what might happen after RAI.) The good news is that while I did put on some weight after RAI before I was on thyroid replacement hormone (Sythroid) and while they adjusted my level in the first six months to a year, my weight has returned to normal and has stabilized there. My RAI treatment was over four years ago, and I have maintained a consistent, healthy (thin) weight for at least the last 3 (Yay!). So it certainly is possible, and I hope you find the same holds true for you. <br /><br />(Note: it took years before my levels were just right so that I felt well, but my weight had bounced back long before that. The key for me was I learned that caffeine affects Synthroid absorption--something none of my doctors knew--so once I figured that out & adjusted my caffeine intake, my levels stabilized.)Amy Joyhttps://www.blogger.com/profile/17198096563988401941noreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-23012929499058342015-06-22T10:56:31.143-04:002015-06-22T10:56:31.143-04:00I hope you are finding that you are sleeping bette...I hope you are finding that you are sleeping better already, but I know since it's only been a few months, your doctor may still be working to adjust your levels to get them just right. As a result, you may not yet be sleeping well. If so, please know that once my levels were on track, I did sleep much better. I hope you find that holds true for you too. <br /><br />As for weight, I addressed this issue in the next comment, but the answer for me was: once the levels were right, I was back to my normal, healthy weight. Best wishes.Amy Joyhttps://www.blogger.com/profile/17198096563988401941noreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-53272205481939036902015-06-21T08:39:32.659-04:002015-06-21T08:39:32.659-04:00Hi everyone, I will have RAI treatment next week....Hi everyone, I will have RAI treatment next week. My emotions fluctuate from days when I am happy to days when I am extremely irritable, anxious and depressed. I have lost friends in this stage but my family is very supportive and they want me to do the RAI and I am doing it for them. I have a silly fear, gaining weight after RAI. Did anyone keep their weight after RAI? I am afraid of gaining weight and being even more depressed. thank youAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-29028494311245864752015-04-18T09:23:09.185-04:002015-04-18T09:23:09.185-04:00will I regain some weight and sleep betterwill I regain some weight and sleep betterAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-55253087008699633382015-04-18T09:19:00.082-04:002015-04-18T09:19:00.082-04:00I am 56 years male diagnosed with greaves disease ...I am 56 years male diagnosed with greaves disease had rai 1 day ago so far so good I lost a lot of weight, had sweats,,shaky hands, and insomnia I am hoping life returns to near normal can any one comment.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-28828265831111211302013-09-25T02:28:13.326-04:002013-09-25T02:28:13.326-04:00Hi, I'm currently on day 3 after RAI treatme...Hi, I'm currently on day 3 after RAI treatment, living in my mothers extension away frim my young family :-(<br />I've had a high dose if radiation at 523 MBq so i cannot have normal contact with my youngest child for 20 days. I missed her first full length day at school and my eldest walked into school sobbing 3 days ago. Braking my heart being away from them.<br />For me that's the worst part, the isolation. After 8-9 years of living with graves I'm hopeful this will help.<br />Good luck to everyone else going through this difficult time, I feel your pain! Mrs W xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-87595930772662205582013-07-31T23:32:12.136-04:002013-07-31T23:32:12.136-04:00Hi all. I had RAI Oct '08 six years after diag...Hi all. I had RAI Oct '08 six years after diagnosed with graves disease and on carbimazol at age 52.Six months later became hypothyroid. Have been on thyroid replacement since. It's been hard to zero- in on correct dosage of thyroxine. Am told it should be 0.7mgrms/kilogram of body weight. My ideal dosage should be between 125mcgrms and 175mcgrms. Till date my tests have never come out as euthyroid. Have always fluctuated between hypo to hyper, sometimes with the symptoms of each. This is the only disappointment so far. Had expected post RAI life would be a matter of popping 1 or 2 tiny tabs every morning on empty stomach and then, euthyroid! I do my TFTs every 3 months and adjust my dose as needs be without referring to my endocrinologist. I have concluded the euthyroid dosage for my present body weight is between 150-175mcrgrms. At 150 I go hypo and at 175 am hyper. Unfortunate tabs come in 100, 50 and 25mcrgrms sizes. If only 12.5 available, would have tried 162.5 hoping to become euthyroid. All the same life much better with RAI than before. Good luck to all.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-67327429932800798062013-07-31T23:20:01.658-04:002013-07-31T23:20:01.658-04:00Hi all. I had RAI Oct '08 six years after diag...Hi all. I had RAI Oct '08 six years after diagnosed with graves disease and on carbimazol at age 52.Six months later became hypothyroid. Have been on thyroid replacement since. It's been hard to zero- in on correct dosage of thyroxine. Am told it should be 0.7mgrms/kilogram of body weight. My ideal dosage should be between 125mcgrms and 175mcgrms. Till date my tests have never come out as euthyroid. Have always fluctuated between hypo to hyper, sometimes with the symptoms of each. This is the only disappointment so far. Had expected post RAI life would be a matter of popping 1 or 2 tiny tabs every morning on empty stomach and then, euthyroid! I do my TFTs every 3 months and adjust my dose as needs be without referring to my endocrinologist. I have concluded the euthyroid dosage for my present body weight is between 150-175mcrgrms. At 150 I go hypo and at 175 am hyper. Unfortunate tabs come in 100, 50 and 25mcrgrms sizes. If only 12.5 available, would have tried it hoping to become euthyroid. All the same life much with RAI than before. Good luck to all.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-67504632359453137612013-07-12T12:05:53.940-04:002013-07-12T12:05:53.940-04:00Hi there.I had my RAI on 10th July 2013.After bein...Hi there.I had my RAI on 10th July 2013.After being on 40mg carbimozol for the last 2 and a half years. I cannot even stress how ill i have felt over that time Anxity,irritable,sweats, palpatations the list is endless and i feel i would have done anything at all possible to stop feeling how i did.I have 5 children ranging for 12 to 3 and i can't tell you how difficult it has been for me and i'm only on day 3 i feel like a complete freak and i am totally obscessed about contaminating everything and everyone it's awful.My specialist told me i would be ok to have contact with hubby after 3 days and children a week but then when i went for then treatment the SCIENTIST who give me the iodine treatment told me 11 days away from hubby and 3 weeks for the children i feel now like i should of told him to stick there and then as iv'e done nothing but cry ever since and just wish i'd of done more research but it's done now and am hoping things will get better sorry for the rant but seems like everyone here knows where i'm coming from Thanks for reading....Bored RAI paitant lol!Anonymoushttps://www.blogger.com/profile/17512339341287433058noreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-66572940279955854962013-06-20T21:38:14.918-04:002013-06-20T21:38:14.918-04:00Hi Amy,
I had my RAI on Wednesday, June 19th, 201...Hi Amy, <br />I had my RAI on Wednesday, June 19th, 2013. Could you please let me know which cleaning products to use? I would also like to know if sitting outside in the sun is safe.<br />Thank you!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-6818987836722316462013-06-06T18:56:45.154-04:002013-06-06T18:56:45.154-04:00The plot thickens, to cut a long story short. I fo...The plot thickens, to cut a long story short. I found out I was gluten intolerant, within days after giving up gluten (right trauma at first) my lower body rash dissapeared, throat/tonsils became less sore and normal and my hearts stopped thumping away.<br /><br />Could this be it? could the hyperthyroidism have been a symton of a change in the body which resulted in gluten intolerance?<br /><br />My theory is the stomach was damaged and lost it's natural ability to digest gluten and caused an auto immune disorder.<br /><br />cheers<br /><br />frankg_25@yahoo.co.ukAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-2890589987681625592013-05-16T17:29:16.203-04:002013-05-16T17:29:16.203-04:00Hi Amy,
Thank you for your blog, this space allows...Hi Amy,<br />Thank you for your blog, this space allows us to interact with people who have the same disease, I was diagnosed with Grave's Disease four weeks ago, my doctor prescribed Tiamazol but two weeks after appears rash in my skin, they told me that I was allergic, in Mexico is the only drug, so my doctor prescribed radioactive iodine, I saw another doctor and told me he could get PTU and explain what the damage to the liver, but reading your experience and online comments I think I prefer the iodine. I have a bit scared and wanted to ask if you know something about the infertility undergoing this treatment, because honestly I would like to be a mother.<br />Dilaunoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-43928089697590444902013-04-04T20:01:55.618-04:002013-04-04T20:01:55.618-04:00Thank you all for posting your experiences. I was ...Thank you all for posting your experiences. I was diagnosed with Graves disease over 4 years ago and was very hopeful and prayerful that my overactive thyroid would go in remission but after so many years and so many tests my levels are the exact same. So this may be my year to get the RAI treatment. <br /><br />My only concern is my EYES!!!! My very first symptoms were my eyes. I was looking in the mirror one day and noticed that one of my eyes was unusually larger than the other. to make a long story short my eyes got huge. Now they are much smaller than back then. They are bigger than they were before the thyroid problem but they actually look pretty nice being bigger lol. So I dont want them to get any bigger. <br /><br />Anybody have any eye bulg after RAI. I researched it and that is one of the side effects. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-24219367017246544352013-02-16T22:33:11.944-05:002013-02-16T22:33:11.944-05:00I had my treatment Friday and it hads all been a b...I had my treatment Friday and it hads all been a bit bizarre. Stayed with my mum last 2 days so I could have access to separate toilet and bathroom. It is strange because I know I have to take precautions re the radiation but I feel no different except for being a little tired. I head home to the farm to all my animals today will they be in any danger can I touch them? I am worried about touching the dogs, the fat and my chickens. Dies anyone have any help. Email me at kmoneill64@hotmail.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-75650362863158644662013-02-08T20:09:02.275-05:002013-02-08T20:09:02.275-05:00Thanks fantastic. Thanks for passing along the tip...Thanks fantastic. Thanks for passing along the tip. I have heard that acupuncture can be effective, but it needs to be repeated regularly (my understanding was several times a week for a while). In may case this was cost and time prohibitive since I was already in pretty rough shape when we discovered it was Graves Disease making me so miserable. I'm happy to hear you've been able to use alternative treatment options. Best wishes. --Amy JoyAmy Joyhttps://www.blogger.com/profile/17198096563988401941noreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-69422414733750491832013-02-08T20:05:47.943-05:002013-02-08T20:05:47.943-05:00I didn't have a great deal of pain after my tr...I didn't have a great deal of pain after my treatment, but I did have some, and from what I read, neck pain is not unusual. The pain that I did have wore off in a few days. As with anything, if the pain is severe, it couldn't hurt to give your endocrinologist a call. I hope you are feeling better soon. Best wishes--Amy JoyAmy Joyhttps://www.blogger.com/profile/17198096563988401941noreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-63572682865761044362013-02-07T16:07:25.027-05:002013-02-07T16:07:25.027-05:00I had radioactive iodine therapy for my Graves Dis...I had radioactive iodine therapy for my Graves Disease two weeks ago. I recieved the pills on a Thursday and was back to work the following Monday. I felt fine the first week but now my neck really hurts. It hurts worst in the evenings and sometimes can make eating and swallowing difficult. Did anyone else have this issue? If so how long did it last and are there any recommendations to help with the soreness? Should i be concerned? Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-1640830983751449142013-01-27T06:53:26.564-05:002013-01-27T06:53:26.564-05:00Hi very interesting comments.
Im the 35 yo male w...Hi very interesting comments.<br /><br />Im the 35 yo male who was due to have RAI and surprisingly my thyroid count has dropped significantly - possibly negating the need for RAI. <br /><br />I have cut out alchol completely ( after 20 years of drinking) I have limited caffeine to one or two cups of tea or coffee a day ( not sure what this does) I now go to sleep at 9 or 10pm rather than the usual 11:45pm<br /><br />I've been drinking 2 or three cups of lemon balm tea and have had accupuncture. And to go with this I have rationalised my life and <br />my job too. Also taken up a bit of basic meditation.<br /><br />I don't know whether my hyperthyroidism was brought on by genetics, stress, poor diet, alcohol lack of sleep or all of these things but I may just have found the cure.....possibly.<br /><br />frankg_25@yahoo.co.ukAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-50076266034065850322013-01-16T10:36:04.116-05:002013-01-16T10:36:04.116-05:00Hi Dorothy. I'm sorry to hear about the strugg...Hi Dorothy. I'm sorry to hear about the struggles you've had with your eyesight. I did not have the puffiness, and I can't remember now if I had the light sensitivity, but I do remember having general vision problems, despite the face that I did not have the bulging eyes. I have no official evidence (eye doctor's records) to prove it, but I think my vision has improved since treatment. Additionally, my mental functioning has improved and I've been more emotionally balanced (less moody and temperamental) since treatment.<br /><br />I hope you are doing well since treatment. Best wishes. --Amy JoyAmy Joyhttps://www.blogger.com/profile/17198096563988401941noreply@blogger.comtag:blogger.com,1999:blog-8545367433915449032.post-34430288142246469102013-01-16T10:32:16.115-05:002013-01-16T10:32:16.115-05:00Hello. Great question. I still go back and forth a...Hello. Great question. I still go back and forth at times, questioning whether RAI was the right choice. I guess that after all this time, I still wish there had been another option. However, it's easy to question it now, when I'm feeling 98% normal. The fact is, at the time, I was unable to function normally and afraid I was going to have a heart attack because I kept having chest pains so intense I really thought my heart had stopped. I was 35 at the time also, and the idea of dying at that age...well, you know. I did try medication first, but it simply didn't work for me. That being said, if I had it to do over again, I'd still try medication first. <br /><br />I hope this helps. Best wishes. --Amy Joy Amy Joyhttps://www.blogger.com/profile/17198096563988401941noreply@blogger.com